tag:blogger.com,1999:blog-4060372686205861977.post1256035613868474754..comments2024-03-26T05:32:30.698-05:00Comments on Tonia Says: Parenting Kids with Disabilities: Autonomy and ConsentTonia Sayshttp://www.blogger.com/profile/11406280143637741965noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4060372686205861977.post-49960284386434986182017-09-25T18:14:10.229-05:002017-09-25T18:14:10.229-05:00Thanks for this! I'm sharing it! I related a...Thanks for this! I'm sharing it! I related a lot to it!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-11958027199369558382017-09-25T17:55:10.505-05:002017-09-25T17:55:10.505-05:00Dear Tonia,
Here is what Lola wrote on THE ESTABL...Dear Tonia,<br /><br />Here is what Lola wrote on THE ESTABLISHMENT about consent as an Autistic person:<br /><br />https://theestablishment.co/when-youre-on-the-autistic-spectrum-consent-is-complicated-81b16663a43dAdelaide Duponthttps://www.blogger.com/profile/01490123934889071074noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-64539197149942636362017-09-18T14:00:56.156-05:002017-09-18T14:00:56.156-05:00Ah cool. :) Thanks!Ah cool. :) Thanks!Crip Video Productionshttps://www.blogger.com/profile/13892178609759325663noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-41562602727481132652017-09-18T13:52:23.574-05:002017-09-18T13:52:23.574-05:00Margot, YES. Such an important point. Kids canno...Margot, YES. Such an important point. Kids cannot consent to surgery and often it is vital. There will be a post concluding the series next Monday, but this is the last post with new content.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-71273544100886716602017-09-18T13:50:58.534-05:002017-09-18T13:50:58.534-05:00Thanks so much for your comment, K! I'm so so...Thanks so much for your comment, K! I'm so sorry you've also experienced that powerless feeling. I hope many parents do find it helpful <3 Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-43180050999850011402017-09-18T13:45:44.075-05:002017-09-18T13:45:44.075-05:00Very good post. Surgery is this regard is always t...Very good post. Surgery is this regard is always tricky because kids can't consent to that. Sad this is the last post. Crip Video Productionshttps://www.blogger.com/profile/13892178609759325663noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-59376521233610355082017-09-18T13:36:57.057-05:002017-09-18T13:36:57.057-05:00This post (and every post you write!!) is so impor...This post (and every post you write!!) is so important. Thank you, Tonia!!! <br /><br />That last one made me think of an experience I had when I was about nine years old...I had just been told that I needed another surgery and as a nine-year-old, my way of coping with that reality was to press my face into a pillow and say, "No, it's my body and I'm not doing it!" <br /><br />And then I remember that helpless feeling in the pit of my stomach when my parents said, "You don't have a choice." <br /><br />I get that as parents they *had* to make that decision for me (and they made the right one), but that loss of autonomy is so scary, especially when you're young and scared and you don't fully understand what's going on. It's such a hard topic to handle (especially when kids are in a situation where they *CAN'T* have true autonomy, like in surgery), and there are no easy answers, but the guide you've provided here is a fantastic resource that will help many, I'm sure!!Khttps://www.blogger.com/profile/16465476805924801942noreply@blogger.com