tag:blogger.com,1999:blog-4060372686205861977.post292715372995767235..comments2024-03-26T05:32:30.698-05:00Comments on Tonia Says: Parenting Kids with Disabilities: Public InteractionTonia Sayshttp://www.blogger.com/profile/11406280143637741965noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4060372686205861977.post-54971343488491117112020-04-18T16:05:51.327-05:002020-04-18T16:05:51.327-05:00Thanks so much Tonia... another important and nuan...Thanks so much Tonia... another important and nuanced consideration. I will try... approach it with curiosity and gentle support vs. pressure!JWuhttps://www.blogger.com/profile/17698139566563407832noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-55827042243377357112020-04-18T15:47:58.216-05:002020-04-18T15:47:58.216-05:00Just a heads up...
It can be REALLY hard to ass...Just a heads up... <br /><br />It can be REALLY hard to assert ourselves with others. It may help to talk to your son on his own (when there aren't friends over) and ask him about what happened and how he feels about it. Figure out what he would feel comfortable with in the future. <br /><br />Would he like to try asserting himself by himself? Telling his friend he can do it?<br /><br />Would he like you or another safe nondisabled adult to intervene on his behalf? (Sometimes we do prefer this, knowing we often are not listened to / taken seriously.) <br /><br />So happy to read your comments! Thank you!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-48941690563837541852020-04-18T15:24:49.313-05:002020-04-18T15:24:49.313-05:00My 5 year old had a friend over for a playdate rec...My 5 year old had a friend over for a playdate recently. It took me a few minutes to realize that his friend was doing what she probably saw his therapist do with my son in the classroom (help him access the materials)-- he's the only student in the classroom who has a therapist. They were having a good time but it seemed like my son wanted to do things himself. This post reminds me that we can encourage him to tell his friends, "I can do it myself... do it my own way."-- something we hear often at home and hope he asserts with his friends too. Thank you!JWuhttps://www.blogger.com/profile/17698139566563407832noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-63469643047011975762017-07-28T15:37:08.141-05:002017-07-28T15:37:08.141-05:00Everybody's an individual. That's why I m...Everybody's an individual. That's why I make sure to say these are only suggestions and I don't speak for everyone.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-62592785862004206872017-07-28T14:58:39.877-05:002017-07-28T14:58:39.877-05:00Yes, indeed. That's why people should respect ...Yes, indeed. That's why people should respect individual preferences and not assume all disabled people react the same way. I hate when certain activists make statements that imply all disabled feel one particular way. Margothttp://cripvideoproductions.comnoreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-71764917723854028112017-07-28T13:08:40.448-05:002017-07-28T13:08:40.448-05:00For sure. Everyone is different and has different...For sure. Everyone is different and has different preferences and ways of dealing with ableism.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-46607835803750422062017-07-25T00:21:36.903-05:002017-07-25T00:21:36.903-05:00Good post. In my life when I was asked about my di...Good post. In my life when I was asked about my disability I preferred to control the conversation. In my life if a child asks a disability question I always answer but I am more wary of strangers, my family didn't want me talking to strangers anyway(y'know "stranger danger" with kids etc) My general rule is to always to disclose to teachers,friends,employers,coworkers ASAP at the beginning of our interactions as my needs for navigation and time management due to CP come up quickly and not disclosing creates big problems if I spend time with a person on a regular basis. Strangers however are not worth it. I came up with a rather clever way of getting around the "praying incidents" by saying something like "I appreciate your prayers but could you pray for me to help me deal with [insert non disability related life event] or for my friend/family member who is going through [serious life event] instead??" This lets them know we have non disability related life concerns and makes them think. The exception to this would be the few unfortunate times when my disabled friends almost died of medical complications and I prayed for them to recover so I think that kind of disability/healing prayer is okay and much needed. I bring up the privacy issue in my new film too. Margothttp://cripvideoproductions.comnoreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-75734461255835497692017-07-24T11:15:58.776-05:002017-07-24T11:15:58.776-05:00OMG it's a K comment! <3 I missed you here...OMG it's a K comment! <3 I missed you here! And thank you <3 Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-88344776193359329722017-07-24T11:08:39.569-05:002017-07-24T11:08:39.569-05:00Love love love LOVE this!!!! So many important poi...Love love love LOVE this!!!! So many important points...this needs to be shouted from the rooftops. <br /><br />I especially loved this: "Just keep in mind that the most important person in any of these interactions is not the stranger you might be compelled to educate. It's your child." <3 YES. <br /><br />Beautifully written.Khttps://www.blogger.com/profile/16465476805924801942noreply@blogger.com