tag:blogger.com,1999:blog-4060372686205861977.post5595914573782234643..comments2024-03-26T05:32:30.698-05:00Comments on Tonia Says: Let's Talk About The Gap Between Disabled Adults and Parents of Kids with DisabilitiesTonia Sayshttp://www.blogger.com/profile/11406280143637741965noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-4060372686205861977.post-8754358355905750462018-05-06T11:36:46.825-05:002018-05-06T11:36:46.825-05:00Just realized I never replied to this comment. Any...Just realized I never replied to this comment. Anyway yes of course the feelings of disabled adults need to be validated! Both sides need to LISTEN but sometimes the groups shut each other out so the listening never actually occurs. Thank you!Crip Video Productionshttps://www.blogger.com/profile/13892178609759325663noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-64697192921041259722017-03-20T13:59:33.745-05:002017-03-20T13:59:33.745-05:00What an amazing blog written by an even more impre...What an amazing blog written by an even more impressive young woman. You brought up some important points here. At our centers we believe in keeping families together by helping care for the day-to-day needs of differently abled loved ones. Nevada Adult Day Healthcare Centershttp://www.nevadaadultdaycare.comnoreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-13939315291139504802016-08-10T13:20:40.537-05:002016-08-10T13:20:40.537-05:00I think it's important to honor the feelings o...I think it's important to honor the feelings of disabled adults who have experienced difficulties with able bodied parents. These experiences are valid and harmful. There needs to be respect on both sides. I think it's okay for both groups to have our own space sometimes, but also good to reach out to each other when needed. Yes, being able to be an example or a role model to someone else with a disability is so amazing. Glad you've had that experience too.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-27478677374557672192016-08-10T12:14:36.032-05:002016-08-10T12:14:36.032-05:00What I have found through the work with my films i...What I have found through the work with my films is that disabled adults shut the able bodied parents of disabled kids out of conversations due to resentment they had with their own parents and this needs to stop. I also like the "need to feel needed" part. I had an experience where a disabled person looked to me as his role model and it was one of the most wonderful and precious experiences of my life!Crip Video Productionshttps://www.blogger.com/profile/13892178609759325663noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-18915981601550177252016-06-03T10:50:03.920-05:002016-06-03T10:50:03.920-05:00That's awesome! I'm glad you were able to...That's awesome! I'm glad you were able to be there for your friend, and that your parents found disabled role models growing up! That helps so much!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-14610335073738194182016-06-03T00:37:14.791-05:002016-06-03T00:37:14.791-05:00I have a disability and I love the "We Need t...I have a disability and I love the "We Need to Feel Needed" part. When my friend became disabled he looked to me for guidance,he needed me and I loved being the one who was helping instead of the one being helped for the first time. My parents found disabled role models for me which helped me find my voice so I am forever grateful to them!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-4695332727652367772016-05-05T13:50:19.129-05:002016-05-05T13:50:19.129-05:00Hi Laurie,
Definitely, feel free to ask! Thanks...Hi Laurie, <br /><br />Definitely, feel free to ask! Thanks for reading!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-46753230182894217372016-05-05T13:00:42.151-05:002016-05-05T13:00:42.151-05:00So wonderful to hear you tell us parents to "...So wonderful to hear you tell us parents to "ask". That really does mean alot. Sometimes we feel so alone and ilequipped to raise our own kids. I personally am going to reach out more to advocates like you...thank you!Anonymoushttps://www.blogger.com/profile/13460042972581396007noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-14387074069260912952016-05-04T19:25:27.742-05:002016-05-04T19:25:27.742-05:00Thank you!Thank you!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-57392033966066505392016-05-04T19:10:48.920-05:002016-05-04T19:10:48.920-05:00 A great well written post. A great well written post. AZ Chapmanhttps://www.blogger.com/profile/04797298787967914735noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-16763247165983078372016-05-04T19:00:35.056-05:002016-05-04T19:00:35.056-05:00Thank you so much! I think the role model idea is...Thank you so much! I think the role model idea is awesome. It has been something I kind of dreamed about for a while, so I guess it's a dream come true that there is a 10-year-old out there who calls me her "role model." :) And you bring up a great point about parents shying away, perhaps, because our disabilities are different. I have an upcoming post that kind of addresses that exact point. We are very similar, that's important to note.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-30990672544141525692016-05-04T18:57:52.310-05:002016-05-04T18:57:52.310-05:00Thank you!Thank you!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-43567652162440627482016-05-04T18:18:04.719-05:002016-05-04T18:18:04.719-05:00This is really great and very needed. I especially...This is really great and very needed. I especially agree with the role model idea, which seems like an idea that doesn't occur to parents but they appreciate it when someone suggests it. I think another reason for conflict is that some people draw too many distinctions between people with different kinds of disabilities. Parents of intellectually disabled kids, or, say, nonverbal kids, I think tend to shy away from or reject disability bloggers like us because our disabilities aren't like their kids' disabilities. In some ways they are different, but I think some folks don't see how the experiences are similar, too.apulranghttps://www.blogger.com/profile/16133974049950425863noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-54117656850209068542016-05-04T18:02:30.253-05:002016-05-04T18:02:30.253-05:00Excellent post :)Excellent post :)Gleehttps://www.blogger.com/profile/17671758996746410949noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-24253030097509906122016-05-03T10:25:19.895-05:002016-05-03T10:25:19.895-05:00I wonder what's been happening specific to the...I wonder what's been happening specific to the last few months? I've noticed it ever since I ventured into the world of disability advocacy etc a couple years ago. I am really glad you think this post could be effective, though. I'm all about bridging that gap! Thank you!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-85717016320380100032016-05-03T10:14:54.245-05:002016-05-03T10:14:54.245-05:00This post is so good. Every parent needs to read i...This post is so good. Every parent needs to read it, especially with all the "fight" that has been happening in the last few months between parents and the disabled adults. You do such a great job at reaching out to parents with compassion and understanding. Love this!Anonymoushttps://www.blogger.com/profile/09611345201573528750noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-11629294821222338692016-05-02T14:15:34.072-05:002016-05-02T14:15:34.072-05:00I love your comments, K, and this one is no except...I love your comments, K, and this one is no exception. And the institution issue never had such a personal side to it before hearing my grandma talk about it that way. And yes, I think having role models and BEING role models is a powerful thing <3 Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-32964532830995428742016-05-02T12:32:40.931-05:002016-05-02T12:32:40.931-05:00Tonia, you bring up such important points! The ins...Tonia, you bring up such important points! The institution issue never occurred to me before reading this post...wow. I love this whole entire post, but the part that resonated with me the most was when you wrote about kids needing role models with similar disabilities. I love that - it's so true - and I think it can be generalized to ALL people as well. We all need to know that we aren't "the only ones" in any given set of circumstances. Togetherness is such a beautiful thing - and I think that's a huge part of why our friendship means so much to me. xoKhttps://www.blogger.com/profile/07760865013785601720noreply@blogger.com