tag:blogger.com,1999:blog-4060372686205861977.post7509360512356912529..comments2024-03-26T05:32:30.698-05:00Comments on Tonia Says: Let's Talk About Place Blindness and CPTonia Sayshttp://www.blogger.com/profile/11406280143637741965noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-4060372686205861977.post-69458110191980186732021-02-24T03:01:24.605-06:002021-02-24T03:01:24.605-06:00Do you mean the quiz I referred to in my post from...Do you mean the quiz I referred to in my post from today? (Autistic?) You're currently in the Place Blindness post, just FYI.<br /><br />Here is the link. (Asperger's and Autism are now considered the same diagnosis, not separate ones.) http://aspergerstest.net/aq-test/Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-78194553582369634942021-02-24T02:05:34.990-06:002021-02-24T02:05:34.990-06:00Where can I find the quiz? My husband is 46 and I ...Where can I find the quiz? My husband is 46 and I feel he has some autism traits, I have always wondered if he’s a type of autism olgalidhttps://www.blogger.com/profile/09612213609258474509noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-85510377497123432452020-04-04T13:29:34.458-05:002020-04-04T13:29:34.458-05:00Thanks for a wonderful share. Your article has pro...Thanks for a wonderful share. Your article has proved your hard work and experience you have got in this field. Brilliant .i love it reading. <a href="http://www.nagapoker88.top/" rel="nofollow">nagapoker</a><br />Harryhttps://www.blogger.com/profile/15154192408169625291noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-61720096776533706372019-08-22T10:05:21.945-05:002019-08-22T10:05:21.945-05:00Glad this post could help! I know how isolating i...Glad this post could help! I know how isolating it can be.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-81729430460799359942019-07-10T08:29:33.939-05:002019-07-10T08:29:33.939-05:00I have suffered all my life from what U know now i...I have suffered all my life from what U know now is place blindness. People have always said they can't believe how easily I get lost when I'm so smart. No one will let me drive their car because they are afraid I won't know where I am and are afraid I'll panic and have a wreck. It's helpful to know I'm not the only one in the world with this condition! Thank you, Tonia for your help in recognising my condition. I used to tell people when they asked for directions that I could get lost in a brown paper bag...which isn't far from the truth!! ✌ 💜Mothermaryhttps://www.blogger.com/profile/14788215887349067770noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-19141267333756284422018-12-26T21:07:46.651-06:002018-12-26T21:07:46.651-06:00Just found this comment. So happy you've foun...Just found this comment. So happy you've found an explanation. As far as I can tell, place blindness is not just specific to people with CP. (Just as nondisabled people can have what's called Face Blindness, I'd imagine they can also have Place Blindness, too.) Hope the tips help you.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-45074043657773186112018-09-03T21:06:52.781-05:002018-09-03T21:06:52.781-05:00I've had what has always been called "no ...I've had what has always been called "no sense of direction" all my life, as did my mother, and as does one of my children. I got lost in my doctor's office once and couldn't find the front door, finally just followed the wall 'til I reached it (too embarasses to ask the receptionist). HATE malls and Target and Walmart and parking lots - terrified of public transportation - but I do NOT have CP, nor did my mother or son. It's definitely an inherited trait, as is my inability to name some vegetables. Can't remember my family's birthdays or, much of the time, my own age. NEVER been able to remember place names or acquaintances names - yet my IQ is extremely high and I can comprehend complex things, taught myself to use a computer, and so on. I can't believe this has a name and that other people suffer from this, too - finally at 73 I find out I'm not just a nut, and it IS genetic! I'm so excited!!! Kathttps://www.blogger.com/profile/15473559541159773552noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-61581391032245575712016-02-05T19:58:05.489-06:002016-02-05T19:58:05.489-06:00I'm not sure how to describe it? They'll ...I'm not sure how to describe it? They'll dart back and forth really fast (side to side.) I can still see, but it's impossible to focus, because the uncovered eye absolutely will not hold still.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-8720062514214771802016-02-05T19:46:13.381-06:002016-02-05T19:46:13.381-06:00If you don't mind me asking, you mean that you...If you don't mind me asking, you mean that your eyes are moving as in drifting, or moving as in tremoring? My science brain is curious, because if it's the latter, that's nystagmus...and I read a study that said that people with spastic diplegia/PVL are more likely to have latent nystagmus, which is nystagmus that is considerably worse when one eye is covered. :)Khttps://www.blogger.com/profile/16465476805924801942noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-37780543821146014652016-02-05T19:12:34.632-06:002016-02-05T19:12:34.632-06:00OMG how mortifying re: Spanish!
Ooh, glad to kn...OMG how mortifying re: Spanish! <br /><br />Ooh, glad to know the depth perception thing has some basis somewhere that makes sense. My whole life all of these things have felt random and confusing - so nice to have an explanation that makes sense! (I have strabismus, too - both eyes, pretty severe. I've never been able to accurately take a vision test, because if I cover one eye the other one can't stop moving.)<br /><br />Yay! Feel free to come find me on FB and we can either connect there, or we can exchange email addresses via PM.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-48274161171755291162016-02-05T18:27:05.281-06:002016-02-05T18:27:05.281-06:00I'm so glad you found this insight helpful! I ...I'm so glad you found this insight helpful! I was so excited when I found out too. :) <br /><br />YES, that Spanish assignment was crazy! And it was even mortifying because our conversation was recorded, and out of all the people in the class, our teacher chose OURS to project to everyone after! She was laughing because our conversation was half him speaking English to me and half me repeating him in Spanish. <br /><br />And yeah, I was kind of the same as you. I wasn't 100 percent sure I could attribute my awful spatial skills to my CP (as my dad and brother also have sub-par spatial navigation skills, so I figured it might be genetic) but I always wondered...especially because I had some issues with my eyes that I knew were a side effect of CP. <br /><br />I am all of those things too!!! AND YES. I meant to mention that as well! I have awful depth perception too (I wrote a post on it once actually!), and I always assumed it was because I had some mild intermittent exotropia (strabismus - ~75 percent of people with spastic diplegia have it...again due to that optic radiation damage) which was fixed surgically when I was a child. The brain areas I was talking about definitely extend to depth perception as well, though; depth perception is a function of the dorsal stream. :) So you and I probably both have some issues with both our dorsal and ventral streams. <br /><br />P.S. I'd love to connect with you more, either on facebook or via email!!!Khttps://www.blogger.com/profile/16465476805924801942noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-22166729240372686282016-02-05T17:20:47.625-06:002016-02-05T17:20:47.625-06:00This is all SO good to know and I published it ASA...This is all SO good to know and I published it ASAP because I know there are more people than just us who deal with this, and will really want to fit this into a context for themselves, too. THANK YOU for sharing this!Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-50682166744760473652016-02-05T17:18:42.986-06:002016-02-05T17:18:42.986-06:00K!!!! Oh gosh, I was so happy to get these commen...K!!!! Oh gosh, I was so happy to get these comments, you have no idea!!!! That Spanish assignment you mentioned gave me anxiety just thinking about it LOL! How horrifying! Glad you were partnered with someone who knew his way around!<br /><br />It's weird because I actually assumed (haven't actually seen this mentioned anywhere officially) that my issues with spacial navigation) have to do with CP, but I never connected that with Place Blindness.<br /><br />I was born prematurely, too. ALL the things you mention, not being able to gauge distance, walking on uneven ground, etc. JUST LIKE ME. Also, I had a question for your science brain: Do you think this extends to depth perception issues as well? Because I have completely terrible depth perception! (More in the next comment.)<br /><br />Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-90638730676830267512016-02-05T16:12:03.131-06:002016-02-05T16:12:03.131-06:00(continued from last comment because I write too m...(continued from last comment because I write too much! ;)) Many, many people (myself included! and it sounds like you too) with CP have dorsal stream dysfunction, ventral stream dsyfunction, or both. In our case, it seems this dysfunction is a result of that optic radiation damage, but in one of my classes we learned about two individuals who received direct damage to these streams, and that's when you tend to see particularly profound deficits. <br /><br />Anyway, your dorsal stream is your "where" stream. It helps you process movement, guide your actions, and detect the location of objects within your environment. You mention that you have trouble fitting your surroundings into a larger context (SO DO I, times a million!). This could be related to dorsal stream dysfunction; when scenes are complex, your brain can't process visual information as well. Dorsal stream issues are also associated with getting lost in crowds and finding people in crowds. You also might have trouble figuring out how far to reach for things, walking over bumpy ground/steps (separate from motor issues), and walking/talking simultaneously. <br /><br />Your ventral stream is your "what" stream, and it's important for object and place recognition. I believe this is what you are referring to when you talk about place blindness. People with ventral stream dysfunction might have issues recognizing faces (e.g., could this be what happened when you thought you were following your sister?), recognizing objects, and SPATIAL NAVIGATION. I was laughing when I was reading your post because I can relate SO MUCH to your spatial issues. One time, in college, I got lost on the first floor of my building trying to locate a classroom that I'd been to six times before...all because I walked in using a different door than I usually did. LOL. I had to ask another professor for directions and she must have thought I was *nuts*. ;)<br /><br />Anyway, sorry for the novel, but I hope this is validating for you, and feel free to spread the word to others with CP who might have difficulties with spatial navigation! It's weird, because I feel like I shouldn't get excited over brain damage ;) but somehow it's comforting to know that there's a neurological reason for what we experience. Khttps://www.blogger.com/profile/16465476805924801942noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-33319529171715442532016-02-05T16:10:25.672-06:002016-02-05T16:10:25.672-06:00TONIA! My response is going to be so long that I&#...TONIA! My response is going to be so long that I'm going to have to split into two comments, but I can relate to this post SO WELL...I can't even type quickly enough to get my thoughts out! I have an AWFUL sense of direction. I remember once in high school Spanish class, we had to work with a partner to give directions (in Spanish) to our high school from the center of town. This was a route that I took EVERY DAY, but I had no idea how to give those directions. My partner had the opposite problem - he knew the directions, but couldn't say them in Spanish, so luckily we made the perfect team. He spoke the directions to me in English, and I translated them into Spanish. ;)<br /><br />When you were trying to research place blindness and brain injuries, you might have come across a mention that people with CP (particularly spastic diplegia, as it's highly associated with that optic radiation damage - but other types too!) often have difficulties with spatial skills and vision perception even if their performance and verbal IQ scores are normal or superior. I was researching this too, out of curiosity (because my spatial skills leave something to be desired ;) ) and I found several studies on this. <br /><br />And as a neuroscience major, I can actually validate for you that there is a neurological reason underlying these spatial issues that unite so many of us. :) Particularly if you were born prematurely (and thus likely have PVL/spastic diplegia - although I'm sure this often holds true for other forms of CP as well), there was likely some damage of the optic radiations. These are structures involved in visual processing - so your visual acuity might be fine, but the information gets disrupted before it can actually reach the visual cortex in the back of your brain. Once this information makes it to the visual cortex, it then exits via two different pathways...either the ventral stream or the dorsal stream. Khttps://www.blogger.com/profile/16465476805924801942noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-71557182709358781292016-01-25T22:22:35.151-06:002016-01-25T22:22:35.151-06:00FlutistPride, I can definitely relate, though some...FlutistPride, I can definitely relate, though sometimes, even having been somewhere before is not enough to help me orient myself... I bet it's helpful for you, then, to carry a cell phone with the time displayed prominently, or to wear a watch.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-4060372686205861977.post-75904205778609382632016-01-25T18:31:19.468-06:002016-01-25T18:31:19.468-06:00I am autistic and place blind. I cannot find my wa...I am autistic and place blind. I cannot find my way around a place without having been there before or having a navigation guide. I also have no internal clock, so I have to rely on external clocks. Anonymoushttps://www.blogger.com/profile/10616282351291824392noreply@blogger.com