Monday, June 28, 2021

13 Reasons Why: Alex's Relationship with His Mom

2,253 words
17 minute read

TW: GIF warning
Talk of suicide note -- one line read
Spoilers for season 2 and season 4 of 13RW

***

List of scenes referenced in this post:

2x01, 45:36 - 43:49 remaining
TW: talk about suicide note, reads one excerpt from it  

2x01, 16:44 - 15:57 remaining 

2x12, 51:56 - 51:15 remaining

4x09, 39:19 - 38:02 remaining

***

This week, we’re discussing Alex’s relationship with his mom, Carolyn.  (Who, we were thrilled to see, is played by the talented Meredith Monroe -- any Criminal Minds fans remember her as Haley Hotchner?)

Alex’s relationship with his mom is complicated, to say the least.  We don’t see a lot of her.  She, like Bill, spends a lot of time in the workforce, but since the hospital is a place 13 Reasons Why tends to treat with reverence and does not do a lot of exploitative oversharing of -- we don’t see her there.

Tara has mentioned that it’s entirely possible that Carolyn could have been working the night Alex was brought in after his suicide attempt, which is never mentioned, but exists as a possibility all the same.

Since we don’t see Carolyn and Alex together much, Tara and I decided to be sure to include all their scenes together, so we could get a sense of their dynamic.

***

In 2x01 (45:36 - 43:49, TW: talk about suicide note, reads one excerpt from it), Alex and his mom are in the kitchen on Alex’s first day back to school.  His mom lets Alex know his dad is working a double shift, but to “call me if you need anything at all, I can get coverage.”  She also puts milk and another food item close at hand, so Alex can easily reach from where he’s sitting.

How do we feel about the representation of accessibility here?

TONIA:  Having access to safe adult support when disabled...the importance of this cannot be understated.  Carolyn makes sure Alex knows which parent he can reach and that he can call if he needs “anything.”  Having that level of emotional support is not always a given, and that’s why representation like this is so important. 

Tara, would you want to speak to how important emotional support is after an injury -- and the first day returning to school besides?

TARA: I think that type of explicit emotional support from a safe adult is something that Alex definitely needs, but it’s also something he doesn't want to need. That said, I am glad it is offered.

TONIA:  Likewise, the seamless way Carolyn moves the milk and another item closer to Alex, so he can reach them?  It’s something most would consider small, but as so many of us grow up in profoundly inaccessible spaces, we know it’s a huge deal.  

I had to eat what was given to me at meal times, or ask specifically for help carrying food place to place.  As most around me were unwilling to help (at least not without a hefty side of ableism) I did a lot of eating in secret, when no one else was around to make fun of how I had to access food.

We are very much at the mercy of parents or other nondisabled people in a space to give us access to food.

That Carolyn not only does this, but does it without making Alex seem like some sort of pain in her butt while she does?  It sends the message that accommodating disabled people can be easy.


Tara, how do you feel about this moment in the show?

TARA: To me, this seemingly small gesture communicates a lot. Carolyn sees and accepts Alex’s current level of recovery. She understands the injury. She does not expect him to revert back to a nondisabled version of himself, or overcome disability by willing his paralyzed hand to grab the milk carton from the refrigerator and carry it to the table and back.

And by minimizing his cognitive load in this way, Alex will be able to devote more energy to school and all it entails. 

***

[Image: Alex reads his note.]

In the same scene, Alex asks his mom if he left a note.  She says he did, but is reluctant to show it to him.  Alex gets frustrated and yells at her, asking if she threw it away.  She responds by locating the note (close at hand) and giving it to him to read.  

How do we feel about Carolyn’s reaction to Alex?  

TONIA: Kind of mindblown, actually!  She takes his communication as valid!

TARA: This early on in the brain injury recovery process, a brain is easily overloaded due to cognitive or mental fatigue. Cognitive tasks do sap energy, but so do strong emotions - even small amounts of them. We see Alex unable to regulate his tone here as a result.

I can understand her initial hesitation, but I was also pleased to see Carolyn able to keep the conversation going. She focused on the words Alex said, and not the way in which he said them. As a result, Carolyn and Alex were able to move through the moment together. They came to a compromise where she showed him the note (and asked if he wanted to talk about it), and he agreed to speak to his therapist about it. Really beautiful representation of Carolyn respecting communication, taking into account Alex’s maturity and autonomy, while also ensuring that he has proper support after the fact.

***

How does it differ from what we usually see following valid anger by a character with a TBI?

TONIA:  It’s a pretty stark contrast.  The character with the brain injury is usually sent away from whoever they’re speaking to, due to the family member not liking the way the disabled character speaks to them.

Tara, did you want to speak more to this?

TARA: An angry character with a TBI is often portrayed as unpredictable, pitiable or even dangerous, though people with TBIs are four to ten times more likely to experience abuse than the nondisabled population. They are often othered, treated gingerly and held at arms-length. 

Carolyn’s response couldn’t have differed more widely, and I’m glad for that. As Tonia and I so often say, “Media teaches people how to treat people from marginalized groups.” 

***

We’ve seen since the beginning of Season 2 how Carolyn has been controlling Alex’s diet.  In 2x01 (16:44 - 15:57 remaining), Tyler smuggles chips and candy into Alex’s room for him to eat.  

Do we have specific thoughts on Alex’s diet being controlled in this way?  

TARA: In seeing the scenes throughout Season 2, it seems that controlling Alex’s diet feels like one concrete way Carolyn can help her son to stay healthy. One thing that she can control. 

On one hand, I can see the benefits of this - particularly as it isn’t being framed as one more way for him to Get Better. There are certain foods that definitely support brain health, and as Alex is still a minor, ensuring his brain health would fall under Carolyn’s duties - at least in some form.

On the other hand, Alex is certainly old enough to be making his own food choices. And it seems clear based on this scene that the current diet is not one of his choosing. Controlling this aspect of Alex’s life may be helping alleviate some of Carolyn’s anxieties, however - in my opinion - she should be trying to find ways for Alex to feel in control of his own life again.

TONIA: I can remember being ten years old, recovering from major surgery, and being forced -- by my great grandma -- to eat liver and onions and cooked cabbage.  All of it, she said, was high in iron.  (All of it was also the most texturally offensive thing I’ve ever eaten.)

There’s something specific to be said about when you’ve been through a massive medical trauma.  About how it feels to be on the other side of something.  For me, I had no control over what was done to my body.  When I also had no choice about eating something truly hideous, it only added to my sense of powerlessness.

I don’t know how Alex feels, specifically, but I know how I felt in this one instance.

Controlling a child’s diet in a way that’s directly tied to their disability or medical trauma only adds to the overall trauma.

***

In 2x12 (51:56 - 51:15 remaining), Carolyn bursts into Alex’s room with Zach from school.  We know, at this point, that Alex is being threatened by classmate Monty, who is trying to keep everyone quiet who may testify about Bryce.  Most recently, Monty has sent Alex a bullet and a gun, and we’ve seen Alex in his room with both at the end of the last episode.  

Instead, Carolyn has zeroed in on the Sour Patch Kids (which are sitting out in plain sight) and reprimands him: “Alexander Dean Standall!  What is this?  Do you know the damage these can do?”

Let’s discuss this moment.

TARA: Oh dear. What to say about this moment? I kind of appreciate the absurdity of it, to be honest. Carolyn doesn’t know about the threats Alex has gotten. The gun and bullet aren’t sitting out for her to see. But the fact that she is so focused on the health detriments of candy of all things in this scene frames her as the unreasonable person - not Alex. It’s kind of refreshing to see a parent of a disabled teen shown as sort of clueless instead of all-knowing.

TONIA:  Same!  I definitely appreciate the absurdity here.  While the audience knows Carolyn doesn’t know about the threats Alex is receiving, we do, and the fact that we do makes seeing her freaked out about his eating candy more than a little ridiculous.  

I appreciate the decision to include a moment like this.  

It’s levity - a bit of comedy - but like you’re saying, Tara, it also makes it clear that Alex is dealing with so much more, and that to worry about candy at this moment is unreasonable.

***

In 4x09, (39:19 - 38:02 remaining) Alex brings Charlie home to dinner and introduces him for the first time as “my boyfriend.”  Bill says, “It’s good to see you again, Charlie,” and Alex’s brother says Charlie has to sit by him, so they can discuss football.

Privately, Carolyn asks Alex if he’s okay.  Alex says, “I kind of thought this would be a bigger deal.”  Carolyn asks: “Well, is he good to you?  Does he make you happy?” Alex says yes.  Carolyn answers, “Then, it’s a very big deal.”

Should we talk about how important family support is, especially in forging new relationships, post injury?  

TARA: I actually like this scene because it depicts someone with a brain injury just living life. Introducing his boyfriend to his family. It’s so rare to see everyday moments like these on-screen for disabled characters. Of course, the scene is all the better for the seamless family support. 

Carolyn taking a private moment with Alex to check on his emotional well-being is huge. Alex isn’t being demonstrative in any way. He’s just standing quietly, taking a minute. And still, Carolyn asks if he is okay. She cares. 

Brain injuries are complicated because they impact identity. A survivor may feel like a different person post-injury. Family is often our first foray into post-injury relationships, and there’s no handbook. A survivor may wish for family to treat him like nothing is different, leaning into that initial denial. And the family may want not to reduce the survivor to just his injury. 

For most, I think the answer lies somewhere in the middle. You are still you, but you are different at the same time. You are not only your injury, but your injury does affect your day-to-day life. And if family can help to strike that delicate balance, it can definitely make a difference to a brain injury survivor. 

TONIA:  I mean, what more is there to say than that?  You summed it up beautifully.

***

When Alex gets up to speak at Justin’s funeral in the series finale 4x10, he’s only able to read a few lines of what he intends to say before stopping.  From the audience, Carolyn sees this, and tells Bill to “go get him.”  

Bill then gets up and helps Alex back to his seat.

How do we feel about this scene?

TARA: I am not sure whether the average viewer would notice this, but the representation of Alex’s symptoms worsening with a quiet sort of stress (as opposed to the active shooter drill in 4x06) was important to me. Being able to see how intense emotion affects cognitive load - needing physical help to move, stuttering and difficulty speaking beyond being overcome with emotion.

TONIA: Oh, yes.  I’m glad you pointed this out! 

I’m really pleased to see Carolyn respond to Alex’s cues and respond in a way that helps Alex but also respects his dignity. 

 TARA: Absolutely. (And I know this post isn’t about Bill, but it was good seeing him willing to physically help Alex in a very public moment.) 


***

Have you seen 13 Reasons Why on Netflix?  

Did reading our conversation about Alex and his mom help you realize anything or notice anything you hadn't registered before?  

We'd love to hear from you in the comments.

***

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Connect with Tara on Twitter @TaraJean

Monday, June 21, 2021

13 Reasons Why: Alex's Relationship with His Dad

2,455 words
19 minute read

TWs: GIF warning
Mentions suicide attempt
Spoilers for 13RW through season 4

***

List of episodes referenced in this post:


1x06, 4:33 - 3:21 remaining

2x01, 50:10 - 48:40 remaining

2x04, 11:00 - 9:04 remaining, 
TW: allusion to suicide attempt

3x11, 29:51 - 28:22 remaining, 
TW: restraint

3x13, 20:26 - 18:12 remaining, 
TW for talk about suicide attempt

4x04, 17:12 - 14:45 remaining, 
TW: talk of near drowning

--

Alex's relationship with his dad is nothing if not complicated.  In fact, we'll see it has completely changed following Alex's suicide attempt at the end of season 1.  

In addition to discussing wider representation issues like hemparesis and certain scenes like Alex climbing the courthouse steps, Tara and I also wanted to make sure we discussed the dynamics Alex has with different characters in the show.

And because his dad is such an influence in Alex's life, we thought we'd start there.

***


[Image description: A gif of Alex and his dad talking in 2x01.
Alex: We promised each other we'd go back together, and she's going back tomorrow.
Bill: Okay, but we were thinking more like a week, maybe two?]


Prior to Alex’s brain injury (Season 1), his dad (Bill, a deputy in the sheriff’s department) is very all-business with him.  Alex and Bill don’t really have a relationship.  Alex listens and says, “Yes, sir,” and Bill talks.

Four months after Alex’s injury when we see Alex and Bill again, their dynamic has notably shifted.  Bill is softer.  Alex is able to talk to him about things that matter and Bill listens to him. (2x01, 50:10 - 48:40 remaining)

Can we talk about this shift that happens?

TARA: This is definitely an aspect that part of me struggles with. Bill in Seasons 2 - 4 regularly refers to Alex as “Buddy,” which on one hand can definitely feel dismissive and infantilizing to a 16 or 17-year-old with a brain injury.

On the other hand, I don’t necessarily 100% always get patronization vibes from Bill. I feel like he realizes that he got a second chance with his son, and that he wants to parent him with more care than he had previously shown. 

One of the things I enjoy most about 13’s portrayal of brain injury is the space that it gives for nuanced representation. And it’s also why, even without confirmation, I’m fairly certain that there was a brain injury survivor in that writer’s room. 

TONIA: This shift from Bill is like night and day.  His use of “buddy” is definitely borderline infantilizing, at least to me.

On the other hand, I do feel like perhaps Alex’s injury was a wake-up call for Bill.  Does he want kids that “yes, sir” him all the time?  Or does he want a relationship with them?

I think in that regard, the shift is a good thing, because Bill is not leaning into his hardass mode, he makes himself more approachable, and available for Alex to talk to, if he needs to.

***

In 2x04, Alex arrives home after skipping school with Jessica.  Alex’s mom says it’s normal for teenagers to skip school.  His dad makes a comment about everything Alex will have to do if he ever wants to be normal again. Alex is rightly upset and yells that he’s sorry he’ll never be normal enough to please his dad.  

After Alex leaves the room, Bill and Carolyn speak further and it’s clear Bill blames himself. (2x04, 11:00 - 9:04 remaining; TW: allusion to suicide attempt)

TONIA:  Can we talk more about this scene?  It seems rare to have this kind of insight into parents’ perspectives.

TARA: Oftentimes, I think we get too much of the parent’s perspective. And there’s not enough focus on the harm that even “well-meaning” comments wanting a child to overcome disability can cause. 

TONIA:  Yes, for sure!  I meant to say that we don't get to see one parent encourage another to accept their disabled child's limits, in a healthy way.  That's what I find rare.

And I'd love to hear more of your thoughts on this scene, Tara.

TARA:  In these scenes, whenever Alex is in the room, the camera stays with him. And while we do see a brief interaction with his parents, Bill’s ableism is tempered with Carolyn cautioning him toward acceptance of their son’s disability. 

It is also worth noting that, while Bill’s guilt and grief are present, they are not central. They are part of the story; they are not the whole story.

Later, in Alex’s room, we see his sadness, anger, frustration and hurt at his dad’s words. He slams his door and swipes some items off a dresser. He punches a hole in his wall. But his parents don’t swoop in to intervene. Alex is allowed to express himself and have his feelings, and we as an audience are not led toward pity or fear with an ominous soundtrack. 

TONIA:  Yes, and there’s the fact that throughout the show, we see other characters do exactly the same thing.  Clay and Justin, in particular, have also both been angry and sad and made messes in their room, without parental intervention.  So, I think the coinciding representation of this as “teenage frustration” helps to detract from pigeon-holing Alex’s valid frustration as something that is exclusively “because his brain injury made him violent.”

***

In 3x11 (29:51 - 28:22 remaining, TW: restraint), Bill holds Alex back when he finds him in the ring boxing.  “One wrong hit, and you’ll never walk again. You’ll never speak. Is that what you want?”  Alex says, “Maybe.”

Can we talk about the nuance in this scene.  Dignity of risk?  Restraint?  Are Bill’s actions justified?  (Is restraint ever?)  Would there be an alternative way for Bill to ensure Alex’s safety here?  Should he?

TARA: So, Alex is carrying a dark secret that is causing him to act recklessly. The depression that led to his suicide attempt is a factor. So is drug use. Both of these things impact Alex’s brain chemistry and TBI.

I’ll try to address each point separately:

Dignity of risk: So, I believe we’ll be doing an entire post on Alex and dignity of risk. But in this scene, we see Alex choosing to box despite not being cleared by his doctor. He is risking a subsequent brain injury by doing so. As a teenager, I’d expect him to be taking certain risks. But as a minor, Bill is right to intervene for safety’s sake, in my opinion.

TONIA:  I’d say the fact that Bill intervenes here makes it clear that he values Alex’s life.  Which seems like a low bar, but a lot of media does not even do this.  Also, if a typical teenager were risking his life in a boxing ring (boxing without a helmet, for example, regardless of a doctor’s advice against it) I would hope that someone would intervene.  So, I  agree, Bill was right to step in.

TARA:  Restraint: Let’s cut to the chase. Restraint is never okay. Prone restraint, in particular, has caused the deaths of Autistic children. We don’t see that type of restraint here. Bill is right to intervene, but wrong in the way he goes about it - physically restraining Alex from behind. 

Alternatives: Another way to de-escalate the situation might have been directing Alex’s opponent to leave the ring, and then sitting and talking him down.

TONIA:  This is a really good point.  I’ve watched the scene several times, and I’ve never thought about having Alex’s opponent leave the ring.  But it’s so obvious.

TARA:  I think it is also important to mention that this scene plays out the way it does - with the audience seeing Alex’s strength and ability to briefly overpower a fully-grown man - to plant seeds for the reveal at the end of Season 3. That Alex has become strong enough to (spoiler alert) kill his classmate and serial rapist Bryce, by pushing him off of a dock and into freezing water.

It’s a plot device.

So, this scene definitely has its problems.

TONIA: It does.  It’s never easy to watch and it’s one that just feels unnecessary.  As a writer, I feel like, there always (or should always) be a way to tell a story that respects the dignity of disabled people.  

This scene walks that line.

***

In episode 3x13 (20:26 - 18:12 remaining, TW for talk about suicide attempt), Bill comes to Alex and says the case is closed and another boy, Monty, killed Bryce.  Bill tells Alex, “I wish the bullet were in my head instead.”

We know, in Season 1, Alex told his friends his dad is the type to sweep things under the rug, so his choice is not altogether out of character here.

Still, it begs discussing.  How do we feel about Bill covering for Alex?

TONIA:  I’ll be honest, I have always struggled with the idea of Bill covering for Alex.  It’s such a blatant misuse of power.  However, I do appreciate that it’s an established fact that Bill has been this way since before Alex’s injury.  That it’s not just because Alex is disabled now, that Bill feels like he needs protecting.

How do you feel about it, Tara?

TARA: Personally, I feel that sweeping things under the rug is different from actively covering up a crime (ignoring / burning evidence). 

TONIA:  Point taken.  Perhaps, I overgeneralized by universalizing Alex's dad letting him slide on a speeding ticket with this because on the surface both things are illegal.

TARA:  Bill has experienced almost losing Alex to suicide. I think he can’t stand the idea of losing him again - either to incarceration or because Alex’s depression may worsen dangerously leading him to attempt or commit suicide in jail. I would argue that disability did play a role in Bill’s decision. 

In Season 1, (1x06, 4:33 - 3:21) Bill speaks to Alex following a fist fight at school. Alex had insisted Monty fight him after Monty had driven recklessly into a crowd of other students, nearly hitting several, including Alex. While Bill was pleased that Alex received no disciplinary action, he also mentioned, “You paid a price. That’s what we gotta do sometimes,” referring to the injuries Alex suffered in the fight. 

Post-suicide attempt, Bill becomes overprotective of Alex. He dotes on him. It’s clear that he views his son as fragile, worrying about Alex keeping his door open and not allowing him to play violent video games. By telling Alex, “I wish the bullet were in my head instead,” I hear Bill’s guilt. He feels responsible not only for the suicide attempt, but for Alex’s subsequent actions in killing Bryce. And because he feels to blame, he goes to great lengths to protect Alex from facing repercussions. 

***

Is this connected to dignity of risk? (Bill swooping and allowing Alex to avoid responsibility?)

TONIA:  I'd say it is, yes!

TARA: This is obviously an extreme example (murder and the cover-up of one). But I do think there’s a conversation to be had about the role parental guilt and problematic disability attitudes (read: ableism) play in the lives of kids and teens with disabilities. The instinct is to protect them and to soften things for them, particularly because of the belief that their lives must already be so difficult due to existing with a disability. 

Part of the dignity of risk is the dignity involved in facing and dealing with the consequences of said risk. The consequences of this “risk” are extreme. A trial and navigating the legal system (which, of course, only works for certain kinds of people). I would be remiss if I didn’t mention privilege here: being a white male, Alex would experience a certain amount of privilege. However, we saw in Season 2 that Alex was not even able to testify in Bakers vs the Evergreen County School District. Systemic ableism would surely play a part in his trial and incarceration experiences. (Police brutality disproportionately affects people with disabilities - but particularly disabled people of color.)  Alex does not have to deal with any of this, due to his dad’s position and abuse of power.

***

In 4x04 (17:12 - 14:45 remaining, TW: talk of near drowning), Alex tells his dad he almost drowned, which makes him think about killing Bryce by the same means.  He’s feeling terrible guilt and wants to confess.  Bill says: “You deserve your life.  I love you and I always will. And you don’t have to do a damn thing to earn that but be exactly who you are, and live the best life you can.”

What do we think about this conversation?

TONIA: I think this conversation shows deep trust between Alex and his dad.  That Alex can not only confess that he almost drowned but that he wants to confess about killing Bryce and know that his dad will hear him.

While very complicated, Bill telling Alex, “You deserve your life.  I love you and I always will,” that tells the audience that being disabled is not the worst fate ever.  It tells the audience that disabled people aren’t perfect and that our lives still have value.  Just as nondisabled people sometimes make huge mistakes, they are allowed to go on.

TARA: If nothing else, these lines being said to a disabled person by their nondisabled parent is nothing short of revolutionary representation:  “I love you and I always will. And you don’t have to do a damn thing to earn that but be exactly who you are, and live the best life you can.”  Show nondisabled parents how to love their disabled kids, Bill! 

Aside from those lines, though? Honestly, I usually cringe and feel conflicted while watching this scene, mostly due to Bill’s tone of voice. I’m torn between feeling like he’s giving his son a soft place to fall during a vulnerable moment and feeling outraged and patronized on Alex’s behalf. 

TONIA: And as you mentioned earlier, I do think there is something to be said about white privilege here.  Because by now, we’ve seen several people of color in Alex’s class in their interactions with police.  They rarely are allowed to have parents present, they are dissuaded from asking for a lawyer.  They are treated with brutality. 

But it’s clear that because Bill is white and holds a position of power, he can use that power to shield his son.

I don't think we can ignore that.


***

Have you seen 13 Reasons Why on Netflix?  

Did reading our conversation about Alex and his dad help you realize anything or notice anything you hadn't registered before?  

We'd love to hear from you in the comments.

***

Don't forget to connect on Facebook / Twitter / Instagram

Connect with Tara on Twitter @TaraJean

Sunday, June 20, 2021

Father's Day Isn't for Everyone...and That's Okay

386 words
3 minute read

I was around eleven years old (and maybe in the midst of making a Father's Day gift) when I asked:

"Why isn't there a Kids' Day?  Moms and Dads get their own day where they get presents and cards...  Why don't kids?"

"You have your birthday," I was told.

"So do you," I said diplomatically.  "Parents still get an extra day where everybody's nice to them.  It's not fair."

"That's because every day is Kids' Day.  Parents have to think about their kids every single day.   But not the other way around."

I went back to what I was doing, feeling depressed.  The message was loud and clear: Kids don't need appreciation, love and care.  Parents do.

[A little girl with braided pigtails and her father are seen from the back.  There's a good bit of space between them.  Her father is only partially visible.]



***

The Father's Day posts, though...

Today, they are everywhere I look...celebrating dads.

It's not that I don't want people to have had good experiences with their dads.  I do.  It's just...painful.

As with Mother's Day, there's a certain subset of people (ahem, trauma survivors) for whom Father's Day is nothing but a massive trigger.  And if you were born around or on either day?  It's worse.

So, I want to say to those of us who might be struggling a little (or a lot) today that however you need to get through today is okay.  If you need to treat it like any other day, fantastic.  If you need to process years of trauma, go for it (maybe a little at a time.)  And if you are stuck living with or seeing a dad who hasn't been there for you?  That hasn't treated you well...or even like a person?

It's okay if you just want today over.

It's okay to marathon your favorite show or bury yourself in a good book and just let yourself forget as much as possible.

***

If you haven't heard it yet today (or maybe ever) you are loved and you are important just because you're you.

I challenge those of us who struggle today to do something kind for ourselves (even something small) and know that we are not alone.

I'm with you.

***

Don't forget to connect on Facebook / Twitter / Instagram

Monday, June 14, 2021

13 Reasons Why Scene: Alex Climbs the Courthouse Steps with Tony and Clay

1,008 words
8 minute read

TW: GIF Warning
Spoilers for 13 Reasons Why 2x03

***

Scene referenced:

2x03, 41:45 - 41:07 remaining

***

We love it when disability representation is done right.  And there is one scene in 13 Reasons Why that -- to us -- is done gloriously right.  Because of that, we want to do it justice and analyze it to its fullest.  

That’s why we’re including it line by line and not just answering general questions about it.

In 2x03, Alex gets a ride to court with Tony and Clay.  This scene is one we enjoy a great deal.  So we’re prepared to share our thoughts in detail:

***

Tony [gets out of the driver’s seat and jogs around the car to the passenger door. Alex opens it as he arrives]

I got it! I got it, I got it, I got it. 

[Tony is presumably holding the car door open for Alex, as Clay gets out of the backseat.]

TARA: I love that this is here, because disabled people all know at least one overly-helpful-and-nervous nondisabled person. Tony is that person. :) 

TONIA: Oh my gosh, it’s true.  I love that this representation is in here.

Clay: Thanks for the ride, Tony.

Tony: Oh, I’m coming in [to watch the trial] with you guys.

[Alex gets out of the car with his cane.]

Clay to Tony: But you’re on the witness list --

Tony: I got --

Clay: --They check it.

Tony: No, I got my brother’s ID.

[Tony checks that Alex is fully out of the car, then shuts the car door.]

Tony: I haven’t slept in two nights. I just wanna know what I’m looking at in there. [to Alex] What if you’re on the list [to testify]?

TONIA: Ah, suddenly Tony being super-high strung here makes more sense...

Alex: I’ll just wave my cane and cry.  It works everywhere. [Alex approaches the courthouse steps and starts to climb.]

TONIA: While part of me admires Alex’s ingenuity, using people’s ableist biases against them, another part of me cringes here because of the common assumption that disabled people are always manipulative and working the system.

TARA: Alex hasn’t been asked to testify at the trial in question due to his brain injury. He doesn’t share this information with his friends, though. Instead, he dryly comments on the pervasiveness of ableism, effectively ending Tony’s questioning.

Tony: Wait.  I bet there’s a handicapped entrance.

TARA: Tony’s trying to be helpful here. However, I’m sure Alex is also aware that an accessible entrance exists. He has chosen to use the main entrance instead, though. (Also, conversations about access and entrances are usually had before arriving at a destination - at least, in disability culture.) 

Just because an accessible entrance exists does not mean that Alex must use it. Let him be, Tony. 

Clay: I don’t think you’re supposed to say ‘handicapped…’

TARA:  Clay knows just enough about disability culture to school his friends on outdated or otherwise inappropriate language.

Tonia, I would love to pick your brain about the scene on the courthouse steps with Alex, Clay and Tony. Encountering access barriers with friends is a unique experience. How did Clay and Tony do as able-bodied friends in this moment? 

TONIA: I think I’d welcome friends like Clay and Tony.  While they don’t do everything right, Clay has a passing knowledge about what language is outdated.  And I always appreciate offers of help like Tony’s.  I’d rather be offered help in a difficult situation than ignored.

So, I think they did well!  Especially for high school kids.


[Image: Alex struggles up the steps with his cane.  Tony rushes to his side.
Tony: Take my arm.
Alex: Fuck you both.]


Tony: [rushes to Alex’s side as he continues to climb.] Take my arm.

TARA:  Tony again attempts helpfulness, but with this comment, I notice how little he knows and / or understands about Alex’s injury. Hemiparesis is the paralysis of one side of the body. Alex uses a quad cane, which is a cane with a four-point base, for stability. He uses it with his unaffected arm, which means that only his affected arm is free. This early on in his recovery, Alex has almost no mobility in that arm. What Tony is asking him to do is impossible.

Alex: Fuck you both.

TARA:  Translation: You are both being wildly unhelpful. Stop distracting me. Let me do my thing.

I love that Alex knows what he wants and can assert himself, and that “13” does not paint that as unreasonable. There’s no tragic soundtrack playing beneath this moment, or unnecessary cuts to Alex’s friends’ faces. Instead, we get a wide shot of Tony hovering and Clay walking on either side of Alex as he makes his way up the steps.

Tonia, how do you feel about Alex’s choice not to use the accessible entrance?

TONIA:  I really get it!  

So often as disabled people we are almost pushed to use accessible options.  This is an issue when the access is way off to the side,  So, when things are made accessible but done so in a way where we know we’re the afterthought?  That we’re ‘othered’?  That’s difficult.  

So, I think Tony did well to offer the accessible entrance as an option, but not to push it as something that Alex had to do. 

Also, in Alex’s situation, he’s with two friends, who are able-bodied.  Whenever I was in a situation like this, my goal was always to make the ‘difference’ as least noticeable as possible.  Clay and Tony would have used the main courthouse steps had Alex not been with them, and Alex knows that.

His choices here make a lot of sense to me, and I also love this scene.


***

Have you seen 13 Reasons Why on Netflix?  

Did reading our conversation about accessing public buildings while disabled help you realize anything or notice anything you hadn't registered before?  

We'd love to hear from you in the comments.

***

Don't forget to connect on Facebook / Twitter / Instagram

Connect with Tara on Twitter @TaraJean


Monday, June 7, 2021

10 Things to Know When Getting Vaccinated with CP

708 words
5 minute read 


Two days ago, I got my first dose.

I'm not a medical professional, but I am an adult living with CP and I know there have been a lot of questions about people with CP getting the vaccine.  So I thought I'd share what little I do know (approaching 48 hours post Moderna vaccine...)

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1. Drink 16 ounces of water in the hour before your shot (if you can.)

Not sure of the logic behind this other than it's good to be hydrated.  I definitely feel like it helped me.

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2.  It's okay if you're a little late.  

Stuff happens.  In our case, even while factoring in extra time, there was traffic.  But they did not get mad or give our appointments away.  It was more like, "Great! You're here!"

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3. The temp check might be tricky if you live where it's warm / summer.

My first temperature check, the pharmacist was like, "Oh, you are way too hot!"  I had no idea.  But the temperature outdoors was 101 that day.  And I definitely sat outside for more than a few minutes (by myself and masked) soaking up rays for the first time in over a year while waiting to get picked up.

In short?  If you've got a bit of hypochondria like me and come in running hot, hang out in the air conditioning or in front of a fan.  

Your temp should come right down.

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4.  If you have CP, you have a few extra things to consider when choosing which arm.

I chose my left (unaffected) arm, because I didn't love the possibility of my spasticity kicking in with the pain.  But I'm also a back-sleeper.

Tara chose to get hers on her CP side because she sleeps on the other arm, and obviously sleep is good.

We are both happy with our choices.

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5. I chose to share that I did not want to hear about side-effects because of anxiety.  The pharmacist honored my request.

More than that?  She said it was really common. 

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6.  Honestly?  I've had flu shots that were way more painful.

If you're worried about the pain of the actual shot, I'm hopeful that sharing my experience will be reassuring.  So, yes, it was a shot, and there's anxiety there.  But it was probably one of the least painful shots I've ever had.

(Tara literally said: "Oh, that's it?" after she got hers.)

After I got mine?  I posed for this picture and told Tara: "I never pass up an opportunity to flex."

[Tonia in a black, tie dye mask and a blue shirt with her post-vaccine bandaid showing.  Her shirt reads 'Keep Staring...I might do a trick!]




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6. Be prepared to wait 15 minutes after you get it.

(If you're me, you'll use part of that time to use the facilities thanks to all that water beforehand.  We brought and used disinfecting wipes and our own hand sanitizer.)

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7.  Your arm might be sore the next day.

Mine was its worst (not that bad -- I've had worse arm pain after a flu shot) yesterday morning, when I woke up.

Now that it's day two, my arm feels back to normal.

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8.  Take Ipuprofen / pain relievers as needed.

I did need to take some after the fact, but I likely would have anyway, since exertion and CP.  But I haven't been in agony.


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9. Rest

If you need to rest, rest.  

We've both been a little or a lot more tired than usual, but are trying to listen to ourselves and rest as much as we can.

Rest is productive.

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10. Keep drinking water

My biggest post vaccine symptom surprisingly has been thirst.  (Which, again, isn't terrible.)

We regularly drink more than 96 ounces of water a day, so staying hydrated isn't something I've been concerned about.  

But where usually drinking water feels like a chore, now it feels more like, "I could use some water.  I'm kinda thirsty."

***

If you're getting vaccinated, you've got this!

You'll be okay.

And I genuinely hope this helps ease your mind.



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13 Reasons Why: Representation of Hemiparesis

1,819 words
14 minute read 

TW: GIF warning
Mention of suicide attempt
Spoilers for season 2 of 13 Reasons Why

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Scenes referenced:


Alex puts his backpack on in school hallway:
2x02,  41:35 - 41:19 remaining

Alex and Clay talk on the bleachers:
2x05, 46:19 - 45:35 remaining

Alex talks to Zach about plateauing: 
2x06, 20:10 - 18:14 remaining
TW for mention of suicide attempt

Alex stands on the courthouse steps: 
2x12, 4:13 - 4:00 remaining

***

We all have shows we marathon again and again, especially in quarantine and during a pandemic.

I never expected that 13 Reasons Why would be that show for me.  

When I first watched it, honestly, my take was more along the lines of Keah Brown's in her article, "13 Reasons Why" Shows How Television Needs to Do Better With Disability.

While Tara loved the show, and has been rewatching on a loop since June, 2020.  It took me until about last September to come around to appreciating it.  I had to, first, figure out a way to watch safely (fast forwarding through self harm and brutal assaults / content).  When I did, suddenly this world and it's characters, and why Tara loves the show so much became abundantly clear.

A big reason we love it so much -- besides the loving and the caring and the coming through for those you care about -- is actually the disability representation.  While almost every character has trauma, these posts are going to focus on Alex Standall, his brain injury, relationships and related mental health topics that are portrayed. 

We are also aware that while "13 Reasons Why" does a rare job at portraying an entire disabled character, not just a trope, this representation is still exceedingly white and exceedingly male.  We acknowledge that there needs to be representation beyond this.  We need to see multiply marginalized folks represented, too.  (See Vilissa Thompson's hashtag #DisabilityTooWhite for more on this.)

***

First up?  Representation of Hemiparesis.

Alex survives a suicide attempt at the end of season 1, which leaves him with a brain injury that includes hemiparesis (also known as hemiplegia) which is muscle weakness and/or paralysis on one side of his body.  This appears to affect Alex's left arm and left leg, but it can also affect the face.

We are really excited to delve into this content with you.

Feel free to watch along (or not -- if you do, please be safe) and join us as we unpack some of the moments that stood out the most to us.

***

In 2x02 (41:35 - 41:19 left in episode), we see a brief moment of Alex adapting to put his backpack on in the hall, post brain injury.  Why does this moment resonate?

TARA: It’s a powerful thing to see yourself represented on-screen. And when I saw Alex having a conversation at his locker while putting his backpack on, I saw myself. I saw adaptation being normalized, because there was no tragic music in the background or sad glances from friends. 

Representation teaches us how to treat people that we don’t get the chance to interact with on a daily basis.  This moment tells us, “It’s okay to do things in a different way. It’s okay if it takes a little more time.” We see that we don’t need to make a big deal if we see someone doing an adaptive movement. That it’s okay to interact as usual in these moments.

TONIA:  Same.  I love seeing moments like these represented on screen.  They remind me of how I was taught to put on my coat.  (To lay it open, upside down, on my desk, take it by the arm holes, and flip it over my head.)  As an eight-year-old, there was nothing subtle about it, and there were lots of jokes about me accidentally hitting kids with my jacket.  (I hope I didn't!  If I did, I'm sorry.)

This moment is even better because it's so normalized, like you're saying, Tara.

***

[Image: Alex, on the bleachers.  We see his brace and his cane.  He uses his right hand to put his earbuds around his neck.]


In 2x05 (46:19 - 45:35 left in episode), Clay finds Alex on the bleachers during school and says, “Isn’t this your special resources period?”  Alex responds: “Yeah, I hate that shit.”

This is one of the only references to how school has changed for Alex.  Can we talk about how accommodations framed as special treatment make us resentful?

TONIA: While I can’t relate to having a sudden shift (from no accommodations to accommodations) I did always resent needing them in school, because I knew how they were viewed by my peers.  And a lot of times, I had to get accommodations through a really ableist source.  Someone who spoke to me really condescendingly, or was shocked when I succeeded really well in a certain area.

What about you, Tara? Do you think Alex’s view of his accommodations is realistic?  Why or why not?

TARA: Acquiring a disability such as a brain injury is difficult for many reasons. One of those reasons is a loss of once automatic skills, and the effort it takes to attempt to regain them. So, you’re grieving the loss of your former identity and the loss of these skills. And then, you’ve got to deal with the stigma of having a special time of day devoted to all that you’re simultaneously grieving and working to regain, while also struggling to accept who you are and what you can or can’t do right this minute. It’s a lot.

***

In 2x06 (20:10 - 18:14 left in episode, TW for mention of suicide attempt), Alex has been told he is “plateauing.”  He describes it saying that “after six months, no matter how hard you work, your body just settles into being broken forever.”

We see his depression here.  He says he is “useless”.

Is this accurate?  Why or why not?

TONIA:  I’m not sure if I’m the one to comment on accuracy here, but it does seem (from what I know) that the medical community feels that there is some kind of time limit on optimal healing after a brain injury.

Tara, I’d love to know your thoughts.  Is this accurate?  (Both the medical pronouncement and Alex’s feelings.)  Why or why not?

TARA: Twenty-some years ago when I had my brain injury, the common understanding was that the window of improvement after an injury closed after two years. I’m not sure how the medical community has changed since then, but Alex hearing from his doctor that he is plateauing doesn’t surprise me. I think, from an insurance standpoint, large improvements justify continued care. Small improvements are often not deemed worth the money. 

Alex’s depression, grief and anger are all extremely real. Feeling useless is a huge piece of internalized ableism, thanks to a society that so highly values productivity as a sign of worth. 

There is next to no normalization or media representation of a worthwhile disabled life post-brain injury, so it makes sense that at this point in Alex’s healing, he views his body as broken.

***

There’s a brief moment on the courthouse steps in 2x12 (4:13 - 4:00 left in episode), where Alex is seen in a wide shot, just standing on the stairs in the midst of a huge crowd of people.

Can we talk about what we notice here?  

TARA: I think my exact words were, “That is the most nondisabled thing I’ve seen [from Alex] in the whole series [post-injury].”

TONIA:  Yes!  Once you pointed it out, I noticed he was really at ease.  Like, probably too at ease for the situation.

TARA: The relaxed posture! Not leaning on the railing or needing anyone for support!

TONIA: I don’t use a cane but as someone who used crutches, I’d be thinking about how I could navigate those stairs safely (and likely be exhausted from standing so still.)

In Alex’s place, I might hand off the cane to a trusted person, so I could use the railing (more stable) to navigate down the stairs.

TARA: Being that it is a new injury for Alex, and that he is a new cane user, it does make sense to me that he might inadvertently get stuck in a situation like this - but as I mentioned, the body posture of the actor in my opinion makes for an unrealistic portrayal of this tiny moment.

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Knowing that Alex is not played by an actor with a brain injury, how do we feel about his portrayal of hemiparesis overall?  Does it feel accurate / respectful?  Why or why not?

TARA: To be fair, as of 2021, this is the only portrayal of hemiparesis that I’ve ever seen on screen. (I’ve seen some portrayals of cane use post-brain injury, but never hemiparesis.) 

TONIA:  This is such a good point, and one I hadn’t realized.  Go on...

TARA:  I definitely believed Miles Heizer’s portrayal. I enjoyed seeing him adapt on-screen, especially in Season 2. These small but seamless moments meant a lot. In my opinion, it was extremely accurate because it felt authentic. And I think this helped the representation to also feel respectful. 

TONIA:  That’s so cool.  I’m glad you get to see yourself respectfully (and authentically) represented here.  I know what a big deal it is.

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How much influence do we think the writing had on the representation overall?

TONIA: I think the writing must have had a lot to do with it.  I can only find one interview with Miles Heizer about his portrayal of Alex post-injury, and he mentions talking to medical professionals, and the use of the leg brace as being helpful.  But there is no indication that he spoke with anybody living with a brain injury for insight.

Because of that, I do feel like the writing must have come from a personal place.  (I know, for example, Nic Sheff wrote episodes having to do with addiction.)  So there’s a precedent for #OwnVoices (so to speak) to exist in the writer’s room.  I think a lot of the authenticity and respect must have started with the writing.

What do you think, Tara?

TARA: This is a question I’ve asked myself a lot: “How much of respectful representation lies in the writing?” And I’ve come to believe that the answer must be, “Quite a bit.” 

The lack of a melodramatic soundtrack during Alex’s emotional moments, the room for a nuanced performance, the fact that we got to see a brain-injured character for three whole seasons with love interests - and he didn't get cured or have his disability forgotten about - these are all rare and pretty amazing things!

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Have you seen 13 Reasons Why on Netflix?  

Did reading our conversation about the representation of hemiparesis help you realize anything or notice anything you hadn't registered before?  

We'd love to hear from you in the comments.

***

Don't forget to connect on Facebook / Twitter / Instagram

Connect with Tara on Twitter @TaraJean


Sunday, June 6, 2021